My daughter works with Nathan's mom, Erin, and she shared the struggle they have with their youngest son, Nathan. At 11 months old, Nathan started showing some symptoms of a blood disorder, but was not fully diagnosed with Evans Syndrome until a year later. Evans Syndrome is a rare blood disorder that causes his body to attack his red blood cells, platelets, and white blood cells.
At almost three years old Nathan has spent countless days in the hospital receiving blood transfusions and IV medications in the hopes that they will stabilize all three blood cell counts and keep him from becoming sick.
This translates into a roller-coaster ride his parents. A normal bump to the head for a toddler means an ER visit to be sure his counts are high enough to heal from it. A simple ear infection can last for weeks on end, even after ear tubes. Nathan’s immune system is suppressed by the medications he’s on, causing him to be susceptible to any and all illnesses that cross his path.
It is a TERRIFYING place to be in as a parent, to have a sick child, one whose illness isn’t always manifested in easily seen physical symptoms. To go to bed at night wondering what your child’s future holds, how long it will be. And to be buried under a mountain of medical bills with no end in sight. It’s enough to make anyone want to stay in bed curled up in the fetal position every day.
These are my daughter's words and she decided to do something about it. She started a fundraiser.
I’m asking for your help. I know many of us out there are strapped financially, but even a $5 donation would go a long way. If enough people donate $5 or $10 we can reach our goal of $10,000 in a heartbeat. If you don’t have the money, then please donate your influence. Reblog this. Share the link to the external site with anyone and everyone. I truly believe that there is a lot of good in the world and I hope to continue to share that in ways like this.
Let's make a difference in their lives. This is the link to donate.
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